| Indian Journal of Medical Ethics | ||||||
![]() Home Current Issue Past Issues Support About IJME Oct-Dec2001-9(4) |
CORRESPONDENCE Testing patients for HIV Regarding Dr V Raman Kutty’s article
on ethics in public health practice (1), I beg to differ with the author with
respect to the following statement: “Perhaps they
forget that the patient has an equal right to know the HIV status of their
health practitioner, since it is a well known route of
spread.” May I ask the
author where he got this reference from? I believe that such reciprocal
transmission is yet to be reported in case of HIV. I have a few
other points to raise. Why is there such secrecy about AIDS? Would you not like
to know overall incidence and prevalence of HIV-infected patients in the region?
If you don’t have the statistics, how do you understand the extent of the
epidemic? How are you going to fight it on a war footing if you don’t even know
(or want to know) statistics of infected individuals? If acute polio can be a
notifiable disease, why not HIV? How ethical is it for an individual who has
acquired HIV from other sources to knowingly infect his wife who is ignorant of
his status? Is there any insurance policy or a job security for an individual
who acquired the infection accidentally while serving humanity? There are no
easy answers to these questions. I feel there are
many misperceptions and much hypocrisy when we talk about treating the HIV
patient ethically. We need to change the overall attitude of society towards HIV
patients. I fully agree with the concept that under no circumstance should there
be discrimination against AIDS patients. However, I do not agree that HIV
testing should not be made routine before any intervention. I can defend my
statement for the reason that even the largest public hospitals in India will
not be able to afford the expenses of medical and paramedical staff taking
universal precautions for all patients routinely. Let me quote the
British Orthopaedic Association’s recommendations on what should be worn by the
surgical team for the prevention of HIV and Hepatitis infection in operation
theatres (these are only excerpts): Protection of
face and head:1. Full eye
protection goggles or visor, not spectacles; 2. Closely fitting hood of finely
woven material, or disposable paper, covering the neck; 3. Ventilated hood or
gown in high risk cases.(comment: these
are currently not available in India). Gowns: cotton gowns
are not acceptable. Wrapover type of adequate length gown made up of high
quality disposable paper, preferably laminated at the front and sleeves. They
should be of a fabric with proven resistance to strike
through. Gloves: Double gloving
with cotton outer gloves. Frequent changes of the outer gloves are
recommended. Foot
protection: Wellington
boots impervious to penetration, knee high, well overlapped by the
gown. In every case
these precautions are obviously not practical. The question here is, are we well
equipped and ready to treat HIV cases in epidemic proportions?
Doctors are like
soldiers on the battlefield. Their dedication, commitment and sincerity should
not be questioned. Are we going to ask our soldiers to lay their lives without
arming them adequately for the fight against the very strong enemy? Denying the
obvious fact that most public hospitals do not have these amenities is like
pulling a hood over one’s eyes. Also, there is no quality control over the ‘HIV
kit’ they provide the staff. Ethical issues
need to be re-examined in this perspective. Mohan
Desai, 22/B/3rd floor
/Anamik Co-operative Housing Society, Arya Chanakya Nagar, Akurli Road, Cross
Road No.1, Kandivali (E), Mumbai 400 101. Reference: Risk of HIV from surgeons It is now an established routine that
all patients undergoing surgery have to be screened for Hepatitis B and
sometimes Hepatitis C, in addition to HIV. Although it entails an additional
financial burden on the patient and has its lacunae, it is tacitly accepted by
the patient. It is ostensibly meant to prevent the surgical team from being
exposed to the virus. Has not the
patient got an equal right to protect himself by asking the surgeon to have his
blood test done? I know of three surgeons who test positive for the above
infections. One is an old case of Hepatitis B and another is strongly positive.
A third is positive for Hepatitis C and suffers from pancytopenia but continues
to operate on patients with what can be called cursory precautions. In my
opinion it should be mandatory for hospitals to screen surgical staff
periodically. I invite the opinions of your readers on this
issue. Dr P
Madhok, Ashwini Nursing
Nome, 15thRoad, Khar, Mumbai 400
052. Excerpts from a letter to the
president of the Poladpur Medical Association, Poladpur, Raigad,
Maharashtra: Iwas impressed by the 80 per cent
attendance for my talk Sir, I admire you
and your members for the way they have adapted for learning and avoiding
becoming slaves of sponsorship. I hope this message is conveyed to all
presidents and officials who are putting their major energy into searching for
sponsors for medical CMEs. Yours
sincerely, HS
Bawaskar, Mahad, Raigad,
Maharashtra Dr Bawaskar’s comment is welcome.
Please read the Letter from Sewagram on page 130 for another example of an
unsponsored meeting. -- Editor. Stop press: a landmark
judgment On September 4, 2001, the Bombay High
Court held that The judgement was
in response to a case filed in the early 1990s, by Ms. Saroj Iyer, journalist;
the Medico Friend Circle Bombay Group; The Forum for Medical Ethics Society and
Lok Hith. The case was filed in relation to a complaint by Mr. PC Singhi to the
MMC, against Dr. Prafull Desai, surgeon at the Bombay Hospital. The MMC judged
Dr. Prafull Desai guilty of two
misconducts, but was punished only with a warning. Ms Saroj Iyer, who was
also active in the MFC, was not
allowed to witness the proceedings. This judgement will be an important
precedent for the presence of witnesses in Medical Council Inquiries. If a
journalist is allowed, it should not be difficult for doctors and laypersons to
claim the right to witness an inquiry. Are there any takers for such legal
action? Three
precendent-setting high court judgments have emerged from MFC’s (Bombay Group)
campaign on medical malpractice: on registration and standards in private
nursing homes (following from the case involving Ms. Yasmin Tawaria), the
patient’s right to a copy of medical
records (Mr. Raghunath Raheja), and, now, allowing journalists to witness an MMC inquiry against
doctors (Mr. PC Singhi). Mr. Singhi’s long
fight in the civil and criminal courts is still on, and he has won several
battles here. Some of these rulings are also precedent setting, and can be used
by others. Some have been described in the book documenting MFC’s work in
Mumbai:Market, medicine,
malpractice. Amar Jesani, 310
Prabhu Darshan, S. Sainik Nagar, Amboli, Andheri West, Mumbai
400058 Reference: 1.Indian Express, October 22,
2001. The eight consumers’ rights as
defined by the The right to safety This means
the right to be protected against products, production processes and services
which are hazardous to health or life. The right to safety has been broadened to
include the concern for consumers’ long-term interests, not only their immediate
desires. Vaccines introduced in this country are cleared on the basis of foreign
trials and data. Safety and efficacy trials on Indian subjects are done in a
hurry just before licensing. These trials merely test antibody responses and
very few trials monitor adverse reactions over a prolonged period of
time There are
virtually no guidelines on what training personnel administering vaccines should
undergo. Camps are organised where ignorant people administer vaccines. Most
fatalities related to mass vaccination are due to ignorance by the staff.
Storage of vaccines is woefully inadequate; most centres administering vaccines
do not have the appropriate facilities to handle serious reactions to vaccines.
Dangerous vaccines are still available and are used on vulnerable segments of
our population — such as the whole brain rabies vaccine. Vaccine adverse
reaction monitoring systems are not available freely and very few physicians,
consumers or pharmaceutical companies use them. The right to be informed
This means
the right to be given the facts needed to make an informed choice or decision.
This goes beyond avoiding deception and protection against misleading
advertising, labeling or other practices. Consumers should be provided with
adequate information, enabling them to act wisely and responsibly. This is a
right which has been abused with regards to immunisation. On the one hand we
have a large populace of illiterate people whose children are subject to a
paternalistic system where they are not given information on any vaccine given
to their children. On the other hand, a barrage of half-baked truths is fed to
the educated, illiterate, urban rich, inducing them to immunise their children
against diseases for which we know neither the incidence nor the efficacy of the
vaccine in our population.
The right to choose This refers
to access to a variety of products and services at competitive prices and, in
the case of monopolies, to have an assurance of satisfactory quality and service
at a fair price. The right to choose has been reformulated to read:the right to basic goods and services.
This is because the unrestrained right of a minority to choose can mean for the
majority a denial of its fair share. Here again we
have a populace who is utterly ignorant of its choices. Not only are there a
number of vaccines against various diseases, there are also a number of brands
within each vaccine, and with different combinations. Their costs vary, leaving
the medical profession and public confused. The assurance of the availability of
essential vaccines rests with the government. The government has taken excellent
initiative in making essential vaccines available. It is also a credit to the
government that the cost of importing vaccines is entirely borne by the state
and is not dependent on foreign aid. The right to be
heard This means
the right to be represented so that consumers’ interest receives full and
sympathetic consideration in the formulation and execution of economic policy.
This right is being broadened to include the right to be heard and represented
in the development of products and services before they are produced or set up.
It also implies a representation, not only in government policies, but also in
those of other economic powers. This right should be invoked in the recent
controversy over the inclusion of the Hepatitis B vaccine in the national
immunisation programme. A thorough cost-benefit and risk benefit analysis should
be undertaken before introducing this vaccine. Just because the vaccine’s cost
is coming down and it is being indigenously manufactured does not automatically
mean that it should be introduced in the national programme. The right to
redressal This means
the right to a fair settlement of just claims. This right has been generally
accepted since the early 1970s. It involves the right to receive compensation
for misrepresentation or shoddy goods or services. Where needed, free legal aid
or an accepted form of redress for small claims should be available. This right
unfortunately is not available to most of our population. There is no vaccine
injury compensation programme. The legal rights are also not very clear. With
the passage of the CPA, this may change. The right to consumer
education This means
the right to acquire the knowledge and skills to be an informed consumer
throughout one’s life. The right to consumer education incorporates the right to
the knowledge and skills needed for taking action to influence factors which
affect consumer decisions. Very little is
done to educate the populace on vaccines and their effects or adverse reactions.
With a large population, differing literacy levels and a multiplicity of
languages, mass communication is a challenging task The right to a healthy
environment This means
the right to a physical environment that will enhance the quality of life. This
right involves protection against environmental problems over which the
individual consumer has control. It acknowledges the need to protect and improve
the environment for present and future generations. Provision of clean drinking
water is probably more important than immunising the entire population against
typhoid or hepatitis A. The right to basic
needs The right
to basic needs means that availability of articles which are the basic need of
every consumer must be ensured. Vaccines should be classified as a basic need
and exempt from taxes. The government must pass laws to compel essential
vaccines and provide for compensation for defined adverse reactions. There should also
be a political will to manufacture essential vaccines
indigenously. Jagdish
Chinnappa, Manipal
Hospital, Airport Road, Bangalore 560 017. The recent developments in Orissa
have again brought into focus the
fact that food security in India is, at the best of times, precarious. All too
often, the familiar picture of overflowing grain stores and starving people is
invoked. India by all accounts appears to have attained self-sufficiency in food
production with overflowing food stocks and the ability to avert large-scale
famines. Yet, apart from crises during which there are severe food shortages and
deaths, there is evidence that a large proportion of children are malnourished
and that there has been little improvement in the nutritional status of vast
sections of people. Policy changes over the last decade — liberalisation and WTO
requirements including measures such as removal of quota restrictions, changes
in cropping patterns — are likely to significantly affect food security. There
are fears that such policies will aggravate the situation of poverty and
unemployment, diminishing people’s capacity to feed themselves adequately. This
raises many issues that impinge on many disciplines, necessitating debate that
cuts across a range of sectors and activities. In order to bring
together the evidence and enable discussion, the Medico Friend Circle (MFC) has
organised a meeting on this theme. The Annual Meet-2002 of the MFC to be held at
Sewagram, Wardha onJanuary 24-26,
2002, will focus onnutrition and
food security. MFC is an
all-India group of socially conscious individuals from diverse backgrounds, who
come together because of a common concern about the health problems in the
country. MFC includes medical, public health and social science professionals as
well as researchers and students, community health and gender activists. It is a
loosely knit and informal national organisation. Annual meetings usually on a
theme have been a regular feature of its activities. MFC does not receive any
funding and is funded and managed entirely by its members on a voluntary
basis. The Annual Meet
2002 will focus on the following issues: 1.
Status of
nutrition/malnutrition in India: evidence from recent data;2.Health impact of under-nutrition and
inadequate nutrition;3.Review of
nutrition interventions and related public policy issues: Public distribution
system, Integrated Child Development Scheme, Mid-Day meal schemes, etc.;4.Review of nutrition education in
India;5.Wages and employment and
issues in nutrition;6.Issues in
investigating and documenting under-nutrition, starvation and suspected
starvation-related deaths;7.
Politics of food and food security including impact of WTO, new technology, etc., on people,
and8.Food security as a rights
issue and related Public Interest Litigation in courts. We invite papers
based on the above themes. All relevant papers will be published in the
Medico Friend
Circle Bulletinand tabled at the meet.
For details about submission of papers and participation in the meet, please
contact: S.Srinivasan,
Convener, Organising Committee, 1 Tejas Apartments, 53 Haribhakti Colony , Old
Padra Road, Vadodara, Gujarat 390007, Phone: (0265) 340223. E-mail:
chinus@email.com,
chinu@wilnetonline.net The emphasis will
be on field level studies and empirical evidence from different parts of the
country as much as on issues emerging from more formal research studies. The
object of this meet as in other MFC meets will be to facilitate understanding
which participants can ‘take back’ from the meet and apply in their immediate
work. However, written
papers/paper presentation is not a prerequisite for participation at MFC meets.
We would like to invite all interested activists, scholars, professionals and
students to attend the meet. Neha
Madhiwalla, B/3 Fariyas,
143 August Kranti Marg, Mumbai 400 036. |
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