| Indian Journal of Medical Ethics | ||||||
![]() Home Current Issue Past Issues Support About IJME Apr-Jun2002-10(2) |
ORIGINAL ARTICLE Medical ethics: funding the
discourse Nobhojit
Roy Issues in Medical Ethics is in now in its tenth
year of publication. It has been years of voluntary effort and the commitment of
a few, on a shoestring budget, that have seen the journal through. Bringing out
each issue has been demanding. The editorial board is still voluntary and there
is no full time staff. We still share an administrative office and our income is
mainly from subscriptions. Things haven't got easier over the years. We have
been helped by the occasional grant from an institutional donor. Overall, it has
been an uphill struggle all the way. We wrote to 12 editors in this field around the
world to find out how they survived financially. They are: Robert Veatch, Director, Kennedy Institute of Ethics Journal, USA, Gregory Kaebnick, Editor, Hastings Center Report, USA, Bette-Jane Crigger, Editor, IRB: Ethics & Human Research (a Hastings Center publication), USA, Udo Schuklenck, Co-Editor Bioethics and Developing World Bioethics, South Africa, Julian Savulescu, Editor, Journal of Medical Ethics, UK , Richard Nicholson, Editor, Bulletin of Medical Ethics, UK, Arthur Caplan, Center for Bioethics, University of Pennsylvania, USA, Leslie LeBlanc Executive Editor, The Journal of Clinical Ethics, USA, Darryl Macer, EUBIOS Journal of Asian and International Bioethics, Japan, Lynley Anderson, Editor, New Zealand Bioethics Journal, New Zealand, Merle Spriggs, Editor, Monash Bioethics Review, Australia, and Deborah Zion, Editor, Monash Bioethics Review, Australia. We asked them questions on the general structure of
funding available to the journal, the nature of academic affiliation, their
attitude towards advertising and raising non-subscription funds, the strategies
they adopted to increase circulation, and how they handled potential conflicts
of interest. On another note, we asked about their experiences and financial
fallouts of putting up journal content on line . A collation of responses of the
nine editors who replied is detailed below. Sources of funding and associated ethical
dilemmas 1.Journal subscriptions:These alone
accounted for the major chunk of the income of the medical ethics journals.
2.Contribution and grants:Individuals, private philanthropic organizations made these contributions along with a limited number of corporations some of which were health related. Mechanisms suggested to avoid conflict of interest were: a) Editorial staff should not be involved in fund raising; b) Funders should not have any control over the content of the publication, and c) Industry funding should make up only a small portion of overall revenues. 3.Advertising in journals:If journals carry advertising these must not be allowed to influence editorial decisions. Editors must have full responsibility for advertising policy and must ensure that existing standards for advertisements are enforced. Journals should not be dominated by advertising but editors should be careful about publishing advertisements from only one or two advertisers. Funding problems The usual sources of funds were subscriptions,
grants (institutional or industry), and advertisements. Resources were usually
available in terms of administrative space and support, and in voluntary work in
peer reviewing articles, etc. Subscriptions alone accounted for the major chunk
of the income of medical ethics journals. The Kennedy Institute of Ethics
journal and The Journal of Clinical Ethics derived all their income from
subscriptions. They did not accept advertising. Gregory Kaebnick writes that
Hastings Center Report does get non-subscription funds: "The shortfall is
managed through unrestricted charitable contributions. Individuals, private
philanthropic foundations, make those contributions, along with a limited number
of corporations, some of which are health-care related. A small percentage of
funders come from industry, and they are periodically lost because of material
published in the journals." This raises important concerns about conflicts of
interest that accompany large contributions or grants. Each journal's way of
coping with this problem is described below. The editorial board of Issues in Medical Ethics
recently reexamined their own attitudes towards advertising and conflicts of
interest. A pharmaceutical company offered to distribute a CD containing all
volumes of Issues in Medical Ethics produced between 1993 and 2000. It would
have the right to distribute the CD to any doctor around the country without
changing its format or jewel case. Eighteen editorial board members were asked to
vote. Eleven members voted for the offer, four against, one preferred to remain
neutral and two did not vote. An important argument in support of the offer was
that if a product had been produced for sale, and someone wanted to buy it (be
it a pharmaceutical or anyone) and in turn distribute it to a target audience of
physicians, the product could not be withheld, because it was produced to be
sold. The arguments against accepting the offer were: any
association with a pharmaceutical firm amounted to promoting the company as the
latter was piggy-backing on the journal's credibility; it was like taking an
advertisement. This exercise brought to the fore the difficulties
of accepting or denying associations, whether overt or implied. It made us aware
that a pure 'black or white' stand was unacceptable. The most appropriate
ethical stand needed to be defined and periodically redefined together by the
editorial board, readers and publishers. On a similar note, Leslie LeBlanc writes: "here in
the US, there is still discussion regarding who 'owns' medical ethics, and to
align ourselves with one institution rather than another might constrain us in
ways that we don't want." Other strategies and
resources Udo Schuklenk suggests that circulation can be
improved by consciously marketing the journal to western institutional
subscribers and charging them a substantially higher fee. Other suggested
strategies are to sell bulk subscriptions to members of ethics committees,
offering a budget price for subscriptions of large groups, and special issues
for special audiences. At IME, we have tried giving free sample copies for
two or so issues - in the hope they get converted to paid subscriptions - with
limited success. Deborah Zion suggests that if a publisher takes
over the journal, this might provide some funding. Lynley Anderson of New Zealand Bioethics Journal
says "We are fortunate enough to be based at the University of Otago and the
work of all four members of the editorial board of the Journal is funded by
their departments so that helps keep our costs down." Similarly the Hastings
Center has full-time staff available to work on the journals though their
editorial board members are volunteers. About content going
online There has been a lot of debate on the pros and cons
of making IME's content available free on the Internet. On the upside, this
leads to increased readership, easy searching and retrieval of articles. On the
downside, there are concerns that the online edition could cannibalise the
already small print subscriber base, and fears of copyright violations. We
launched our website onwww.medicalethicsindia.orgwith
hesitation and caveats. We find these thoughts reflected around the
world. One person who is clearly thinking digital is
Darryl Macer of the University of Tsukuba, Japan, who has put all of EJAIB's
content on-line and has done so for six years. He admits to losing sales as a
result, but believes that being on-line has the maximum impact on
readership. Lynley Anderson of New Zealand Bioethics Journal
plans to put the journal's contents pages and an article index on the web, but
not the articles themselves. To access to the articles, the reader would still
have to subscribe. Gregory E. Kaebnick, of The Hastings Center Report, writes:
"We do not now make the Report available online, but we have been considering
the possibility of going online. If we do, we will either make the Report
available online only some time after the print version is out, or restrict
access to the online Report to subscribers. I am not aware of any online
publication that makes money." Bette-Jane Crigger of the Hastings Center has
similar views: "It's difficult to know whether making full text available online
helps or hurts small publications-finding data on the question has proven very
difficult. But we are wondering the same thing, since we are preparing to put
both journals of the Hastings Center online over the next two years or so. One
idea we are discussing is to make abstracts freely available, but restrict
access to full text to paying subscribers. We are thinking through the logistics
of just how to do that and what implications it may have for the hardcopy
publications. Now, full text of most articles is available online through
commercial services with which we have contracts. They provide modest royalties
every time an article is downloaded." Leslie LeBlanc of The Journal of Clinical Ethics
plans an interesting variation: "Overseas subscribers would pay a reduced fee
and receive only the password (that is, no paper copies of the journal) for that
fee, saving shipping time and shipping costs. This way, we would be making our
journal more available to those overseas who might not otherwise be able to
afford it, either because of limited budgets (in third-world countries) or
because the added shipping costs make the price hard to justify." Further, she has articulated some peculiar ethical
problems with the internet: "Many subscribers understand that it is ethically
and legally inappropriate to photocopy journal articles and to distribute them
or use them for classes unless they pay a copyright fee; but because there is a
perception that "everything on the Web is free," many otherwise sophisticated
and ethical individuals believe it is completely appropriate to print articles
from the Web and distribute them, sometimes without attribution, in ways that
they would never think appropriate with a printed journal." She adds that in the
US, many journals sell their mailing lists of subscribers to any individual or
organization that is willing to pay for them. She believes this is
counterproductive and unethical, and her centre does not sell or trade
subscriber lists even though it may be profitable. Finally Robert Veatch gives some hope; they do make
some money after all: "Our journal is technically owned by Johns Hopkins
University Press so they set all our policies about Internet access. We have not
considered making our journal available on line free, but many universities have
subscriptions to the entire package of Johns Hopkins journals and we get some
income from those fees." In conclusion, there seems to be no clear consensus
or panacea for funding issues or about going online. The issues of logistics and
the dynamics of the print production process seem to vary with geography and
economy. While the developed world does enjoy better access to resources, and
more institutional and overseas subscribers, the problems and dilemmas they face
are similar to those in the developing world. For a developing country journal
of medical ethics, the choices are harder. Since these journals provide the only
platform for ethical thought and debate, it is vital that they be kept alive.
But at what cost? Dr Nobhojit Roy,
Consultant Surgeon, BARC Hospital, Anushaktinagar, Mumbai, 400094. Email:
roy@medicalethicsindia.org |
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