Vol , Issue Date of Publication: December 19, 2025
DOI: https://doi.org/10.20529/IJME.2025.096

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Rediscovering the simple yet profound joy of breathing without pain: My experience with childhood tuberculosis

Charan Mahananda
Abstract:

In this personal essay, I recount my lived experience of childhood tuberculosis, highlighting the physical, emotional, and psychological toll on myself and my family. I reflect on how tuberculosis care has since improved, but also how certain critical gaps persist, especially the challenges of inadequate financial support, post-recovery social reintegration, and insufficient psychological care for persons with tuberculosis. Drawing from my experience, I advocate measures to address stigma, invisible costs, and discrimination. Holistic care for tuberculosis must go beyond just medical recovery and ensure dignity and meaningful social healing for all.


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©Indian Journal of Medical Ethics 2025: Open Access and Distributed under the Creative Commons license ( CC BY-NC-ND 4.0),
which permits only non-commercial and non-modified sharing in any medium, provided the original author(s) and source are credited.

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