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Vol 4 (NS), Issue 4
Date of Publication: November 06, 2019
DOI: https://doi.org/10.20529/IJME.2019.063
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Research Articles
Why parents consent to their children’s participation in genetic research: A study of parental decision making
Abstract:
Parents need to be asked to provide informed consent on behalf of their child for participation in genetic research. Decision making for such parents is difficult because ethical challenges in paediatric genetic research studies are different from similar adult studies. This paper focuses on interviews conducted with parents who were asked to consent to their children’s participation (or not) in a genetic research study of intellectual disability and/or autism.
Copyright and license ©Indian Journal of Medical Ethics 2019: Open Access and Distributed under the Creative Commons license ( CC BY-NC-ND 4.0), which permits only non-commercial and non-modified sharing in any medium, provided the original author(s) and source are credited.
